I am running the BCS half marathon on Dec 8, 2013 and I wanted to drive it with a purpose. A running partner/co-worker has a son who has Christianson Syndrome which has inspired me to raise funds for their organization www.csa-cares.org.

From the csa-cares.org website: Christianson Syndrome is caused by mutations in the SLC9A6 gene. The mutations and complications from this mutation lead to neurological problems in those diagnosed with Christianson Syndrome. It is a very rare condition and the exact prevalence is unknown. It primarily affects the nervous system and becomes apparent in infancy. It is also frequently diagnosed as Angelman Syndrome. Although with further genetic testing can easily be corrected to Christianson Syndrome. It's characteristics feature delayed development, an inability to speak, problems with balance and coordination and difficulty learning to walk and stand. Most affected children have recurrent seizures that begin around age 1 or 2. Affected children have a happy demeanor with frequent smiling and spontaneous laughter.

Please help me in my efforts to raise funds for CSA! Any amount is GREATLY appreciated!

Thank you and God Bless,
Ashley Loftin